Mesothelioma Resources

Financial compensation, medical care, and support resources for mesothelioma patients and families — including $30+ billion in available asbestos trust funds, VA benefits, and Social Security disability.

$30B+In asbestos trust funds
60+Active trust funds
100%VA disability rating possible for veterans
2–4 WeeksSSDI approval (compassionate allowance)

Resource Categories

For deeper coverage of each topic, see the dedicated sub-pages: Cancer CentersNewly Diagnosed GuideVeterans’ BenefitsSupport GroupsFind a Specialist

💰 Asbestos Bankruptcy Trust Funds

When major asbestos manufacturers went bankrupt due to mesothelioma liability, federal courts required them to establish trust funds before reorganizing. Today, over 60 trusts hold more than $30 billion specifically for asbestos victims. You can file trust fund claims independently of any lawsuit, and many patients qualify for multiple trusts.

Trust FundCompanyEst. AssetsPayment %Common Products
Armstrong World IndustriesArmstrong$2.0B100%Floor tiles, ceiling tiles, insulation
Owens Corning / FibreboardOwens Corning$1.8B40%Kaylo pipe insulation, Fibreboard products
Babcock & WilcoxB&W$1.6B50%Boilers, steam generators, nuclear components
Johns ManvilleJohns Manville$3.0B5%Manville insulation, pipe covering, joint compound
W.R. GraceGrace$1.0B25%Monokote fireproofing, Zonolite attic insulation
Combustion EngineeringABB / CE$1.0B12%Boilers, heat exchangers, refinery equipment
Pittsburgh CorningPittsburgh Corning$3.5B25%Unibestos pipe insulation, block insulation
Eagle-PicherEagle-Picher$2.0B60%Pipe insulation, packing, gaskets
T&N / Federal-MogulFederal-Mogul$3.0B20%Gaskets, packing, automotive friction products
CelotexCelotex Corp.$900M20%Roofing, insulation board, wallboard
FlintkoteFlintkote$500M5%Roofing, flooring, insulation
PlibricoPlibrico$150M20%Refractory cement, furnace lining

Payment percentages change as claims are processed. An attorney identifies all trusts applicable to your specific work history. See full trust fund guide ›

⛺ VA Benefits for Veterans with Mesothelioma

Military veterans account for approximately 30% of all mesothelioma cases. The VA provides disability compensation, healthcare, and survivor benefits with no filing deadline.

BenefitAmount / Details
VA Disability (100% P&T)~$3,737+/month; mesothelioma qualifies for 100% permanent and total rating
With spouse~$3,946/month
With spouse + children~$4,100–$4,300/month depending on number of children
DIC for surviving spouse~$1,612/month base; no income limit
VA HealthcareOncology care; Community Care authorization for civilian centers (e.g., MD Anderson)
Filing deadlineNone — file at any time after diagnosis

Veterans who served in Navy shipyards or aboard Navy vessels before 1983 have a presumptive service connection for asbestos exposure, simplifying the VA claims process significantly. Pursuing VA benefits does not affect your right to also file a civil lawsuit against asbestos product manufacturers.

Full VA benefits guide for mesothelioma veterans ›

⚖ Social Security Disability for Mesothelioma

Mesothelioma is on the SSA’s Compassionate Allowances list — applications are fast-tracked and typically approved in 2–4 weeks rather than the standard 3–6 months.

ProgramEligibilityBenefit
SSDIWork history required; 40 credits (5 of last 10 years)$1,200–$3,200/month based on lifetime earnings
SSINo work history required; income/asset limits applyUp to $943/month federal (2025) + state supplements
Medicare via SSDIAfter 24 months SSDI; may be waived for terminal illnessFull Medicare coverage

Apply immediately after diagnosis — benefits are paid from the application date, not when approved. A mesothelioma attorney can assist with the SSA application at no additional charge.

🏥 Mesothelioma Treatment Centers

Treatment outcomes are significantly better at specialized centers. See the full cancer centers guide for detailed profiles. Top programs include:

CenterLocationSpecialties
MD Anderson Cancer CenterHouston, TXEPP, P/D, HIPEC, immunotherapy trials, photodynamic therapy
Brigham & Women’s / Dana-FarberBoston, MAInternational Mesothelioma Program; EPP pioneer center
Memorial Sloan KetteringNew York, NYPleural & peritoneal, HIPEC, immunotherapy research
Penn Medicine / AbramsonPhiladelphia, PAPeritoneal meso, CAR-T cell therapy research
Mayo ClinicRochester, MN / Scottsdale, AZMultidisciplinary team, integrated palliative care
UCLA / Jonsson Cancer CenterLos Angeles, CAThoracic surgery, immunotherapy research
University of Chicago MedicineChicago, ILMultimodal therapy, Phase I/II trials
Moffitt Cancer CenterTampa, FLThoracic oncology, clinical trials

🤝 Support Organizations

OrganizationWhat They Offer
Mesothelioma Applied Research Foundation (MARF)Clinical trial matching, patient navigator service, caregiver support, research funding
Asbestos Disease Awareness Organization (ADAO)Patient education, advocacy, legislative updates, community forums
American Cancer SocietyHope Lodge free lodging, Road to Recovery transportation, 24/7 helpline (1-800-227-2345)
Patient Advocate FoundationInsurance appeals, financial aid co-pay relief, case management, debt crisis assistance
CancerCareFree counseling, financial grants, educational resources, support groups

Full support groups and caregiver resources guide ›

📄 Additional Financial Assistance

ProgramWhat It Covers
HealthWell FoundationCo-pay and insurance premium assistance for cancer patients
NeedyMeds.orgDatabase of 10,000+ pharmaceutical patient assistance programs
CancerCare Financial AssistanceGrants for transportation, childcare, and home care costs
Medicare Hospice BenefitCovers all hospice services for terminal patients with 6-month prognosis
VA HospiceHome and inpatient hospice for veterans
Merck / BMS / Lilly Patient AssistanceKeytruda, Opdivo+Yervoy, Alimta at reduced or no cost for qualifying patients
Hospital Charity CareMost major cancer centers have financial counselors and charity care programs